One aspect of the procedure that was great was that I had NO prep to do. I didn’t have to starve myself or not drink or take that terrible stuff that gives you wild diarrhea. Nothing. Just showed up, answered the pre-procedure questions and went in to get scoped out.

But I must say that besides that benefit, it still wasn’t a really pleasant experience for me. It’s been about 9 months since my surgery and my rectum is just now starting to calm down. So having a hose stuck up there and a bunch of air pumped in just didn’t make me smile. I did get to watch, which was cool, but my rectum still looks pretty bad, which made sense to me.

The doctor took some biopsies to make sure there’s nothing pre-cancerous going on, but as he was in there trying to get them he was explaining what was there to me. I guess I have virtually none of the normal lining that should be there. It’s totally flat other than a rare bump. Those bumps I guess are called “pseudo-polyps”, though he said they were really the few places of my colon (rectum) that were even close to normal. And he ripped one or two of them off for the biopsies so I have that much less “normal” lining.

I can totally see why things moved through so fast and why there was so much blood for so long. There was nothing left to slow anything down or to absorb anything. And pretty much the whole surface was covered with worn away spots/ulcers. The slightest touch and they started bleeding again.

Oh well, unless the biopsies come back with a problem (which I doubt), I’m going to stick with the bag. At some point in the future I might decide to have the “reversal”, but for now, I think it’s smarter to just continue doing really well with the bag than go back to the uncertainty of having a pouch created out of a rectum that still looks really beat up.

So hopefully that’s the last I have to worry about doctors for the next 6 months until my next check up (just an office visit). But it will be interesting to get the results of the biopsies now that I have been awake to see what the rest of my colon looked like.

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If you have a bag with filters, make sure they don’t get wet. That pretty much ends their life as a filter and you might as well not have them.

I’m not sure what they are made from, but once it gets wet, that seems to be the end of it. Luckily most of the bags that I got with filters came with little stickers to put on over them to keep the water out while bathing. But I hadn’t used filters much and often forgot to cover them up, so after about a day of use, the filter was no more.

So a word to the wise, if you have a size/brand that you like that has filters make sure you cover them up when you are getting wet.

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I would like to file a formal complaint that the people that design toilets don’t know what they are doing. Sure they usually work fairly well and sometimes they have fancy features like “auto flush”, but come on. There’s so much more that could be done to make the toilet a more pleasure fixture in a house.

It seems obvious to me that the people that design toilets never had any kind of digestive problems nor were they big “toilet readers”.

Here are some of the problems that I see with toilets and some ideas about them:

• They get cold–We can heat floors in the dead of winter, but we can’t figure out how to make a toilet seat that doesn’t freeze you. The best alternative out there is a plastic one, but those often get scratched up and gross. I’m sure there are materials out there that are “warmer” and resistent to wear and tear.
• Some have too much water in the bowl and some have too little. The former can causes splashes and the latter can cause things put in the toilet not to be flushed down (especially when combined with a weak flush mechanism). This latter one is more of a problem for me now with my being “re-plumbed” and emptying in the front.
• They are usually too weak to conserve water or so strong they splash.
• Generally speaking, they aren’t all that pleasant to sit on.
• They are a real pain to clean–has anyone ever really stuck there head in to make sure that under the ring around the bowl is really clean?

That isn’t to say there aren’t ANY good toilets out there. I have seen a few. But they are very rare. I would think that a device that every human in the industrialized world uses should be better designed. I guess the companies that make them figure they have the market cornered. I’m sure there are ways to design the bowl to still keep the aesthetics and physics associated with the current designs on the outside and the inside to allow minimal water to flow around the entire bowl without splashing. And I’m sure there are more ergonomic designs for the seat.

Anyway, I’m just putting that out there as someone who has spent more than his fair share of time running for and sitting on toilets.

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I’m free to do what I want again, though it is taking a bit to get used to it again, so that’s where the blog suffering comes in. But I’m determined to get some more organization into my life over the next couple of weeks. And I just found out that I actually have several people subscribed to this blog, so that’s a real motivation because I really want to communicate with and help anyone that might have colitis or an ostomy so that they too can live a full life (either successfully avoiding the ostomy surgery or coming back afterwards).

So here’s to a renewed period of posting. And please make comments and ask questions (you can email me directly at jared [at] ostomyman.com if you don’t want to post for everyone to see.

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I didn’t really know what to expect, so I didn’t bring my extra supplies on the boat with me (dumb move). But then I got in some water fights and was actually thrown overboard with another guy and somewhere during that the seal on my bag started to come undone. There were still a couple hours left to go and it wasn’t that bad so I just wiped it off a bit and pulled my swimming trunks over it to contain anything. After a while it started to get worse and leak a bit more. Some got on the inside of my shirt. Anyway, when we were out of the boat, I ended up just holding my side to keep the bag on and to hide the small spots that were showing through. It definitely dampened the fun a bit for the second half of the trip, but was more of a learning experience than a turn off from doing it again.

So here’s what I learned from my trip. First off, bring a pillow because sleeping on the ground without one just plain sucks. Two, physically it wasn’t a problem at all. I didn’t get sore or anything so that wasn’t an issue. Three, make sure that I reinforce the seal as best as I can with tape and whatever else to help it hold on and to keep the water out. Four, bring “emergency supplies” on the boat just in case they are needed. It would have been a non-issue if I had had my extra supplies as I could have easily changed my bag quickly behind a bush when we stopped (I was already going back there to wipe things off and make sure my bag was as empty as possible). And finally, even with a “blow out”, it’s still possible to have a good time and not ruin everyone else’s time.

So, basically I’m back in the game for physical activities and am on the list to go again next year!

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TPN helped and my feet went down in size, but it didn’t totally handle it. Compression socks weren’t much good either.

But since my surgery, it’s been much improved. I have only gone through two periods of feet swelling. Both about two days and both solved by taking some salt and potassium (or at least that’s what it looks like solved them).

Other than those two incidents, it’s been smooth sailing.

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And then the topic of colon transplants came up on one of the Yahoo Groups that I am part of. It’s not a topic that I have researched at all, but I thought there were some interesting points brought up. One of them was that one of the problems with an intestinal transplant is all of the intestinal flora that differs from person to person. I hadn’t thought how that would be a problem.

Another interesting point was the amount of money and effort that’s put towards handling things like erectile dysfunction (otherwise known as “can’t get it up”) dwarfs the amount of money put towards diseases like Ulcerative Colitis and Chron’s and ways to handle them. Though I must admit that the attention and research has increased over the last few years.

Anyway, if they come up with a way, I’ve got a place I can get some goat intestines! Who knows, it may be how we make our fortunes–goat intestines to help those who are “intestinally challenged”!

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1. Be a dad. I wasn’t much more than an ornamental dad before. Chris had to do everything, but now I can keep up with Daphne (at least as much as any normal person would be able to keep up with a VERY dynamic little one year old). I can play and put her to sleep and take walks and play with her dolls and eat with her and go places with her and do all sorts of things without having to constantly stop to rest or go to the bathroom.
2. I’d say I’m a much better husband again. I’m able to be active and do things with Chris and Daphne. I’m more interested in activities and am able to help out around the house, plus I’m able to keep up those those other husband activities that shall not be named since my parents both read this blog
3. I went golfing. It was on the short nine,  but hey, it was golfing again and it was fun. Plus I have gone to the driving range a couple of times and I plan to continue.
4. I’ve been swimming several times in our local outdoor pool this summer with Daphne. I was a little hesitant since I didn’t have a swimsuit, but I got a special one with a higher waist and I’ve been doing fine. And it helps to have a little one to take swimming because I end up carrying her or her floaty thing so no one would even notice that the front of my shorts are hiked up like Erkle on Family Matters.
5. I can watch a whole movie without having to go to the bathroom in the middle–though I can’t really make it through one with Daphne, but that’s a different story.
6. I have gained weight. I’ve never made it over 135 and have had trouble making it over 115 for the last few years, but since the surgery I’ve gained a bunch and am now stably at 150.
7. Eaten popcorn, broccoli, ice cream and all sorts of foods that were taboo before. Eating has become a pleasure again rather than the bi-hourly necessity to stay alive.
8. I traveled to New York. I had traveled before when I was sick, but it was really hard. This time it was much easier and more pleasurable, and not a journey between bathrooms.
9. I can work a full day easily, whereas before five hours was starting to push my limits.

I’m sure there are plenty more, but that hits the highlights. Overall I’d say it was a very successful decision to have the surgery!

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I somewhat blamed it on working at a computer all the time and not getting outside. And this may have had something to do with it. But I also think that my body was just so shot that my eyes weren’t getting the nutrition that they needed to stay healthy. But now that I am healthy, I’ve noticed that my eyes are getting better and my glasses don’t necessarily seem correct. I’m sure they’ll continue to get better since I am outside doing a lot more activities now and also since I am now absorbing nutrients instead of just feeding them down the drain to th sewer.

I guess this means I’ll have to go in and get my eyes checked again sometime and get some new glasses. But I think I’ll wait a while and then maybe I can get away with officially not needing them instead of just ignoring them!

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